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Over the past few years major efforts to mainstream genomics in healthcare systems, increased sharing of genomic information internationally, and access to direct-to-consumer genetic testing have brought us to the cusp of the long-promised ‘genomics revolution’.
However, these have brought challenges around the interpretation of results from genetic tests, which are in part amplified by the lack of standards and knowledge on outcomes from such results. In parallel access to direct-to-consumer personal genetic testing has whetted the public’s appetite for genotyping and ancestry testing, which can result in increased enquires with clinicians in the public healthcare system. In addition, sharing personal genomic data could result in access by third parties for unintended purposes.
This new conference aims to address these issues. It will bring together geneticists, bioinformaticians, and clinicians from academic and the commercial sector interested in learning the extent to which current genetic testing technologies can help people learn about their personal health and heritage. The meeting aims to democratise access to human genome technologies; facilitate and advocate best practice and governance of personal genomics data access; and promote openness and ethical sharing of personal genome data while protecting privacy of the individuals.
Wellcome Genome Campus Advanced Courses and Scientific Conferences
George Church – Harvard University, USA
Yaniv Erlich – MyHeritage, Israel
Anu Acharya – Mapmygenome, India
Pascal Borry – University of Leuven, Belgium
Gustavo Glusman – Institute of Systems Biology, USA
Bastian Greshake Tzovaras – Open Humans, USA
Christi Guerrini – Baylor College of Medicine, USA
Joanne Hackett – Genomics England, UK
Lorenza Haddad – Codigo46, Mexico
Andres Metspalu – Estonian Genome Centre, Estonia
Saskia Sanderson – University College London, UK
Colin Smith – University of Brighton, UK